This is Us Time | Healing Feeling

When Ethan was diagnosed with FOP—an ultra-rare bone disease affecting roughly one in two million people—his family couldn’t picture what camp, or even a normal day, might look like for him. Constant vigilance and uncertainty had become the norm.

Then they found The Hole in the Wall Gang Camp’s home in the Mid-Atlantic, and everything changed. Watch as Ethan’s parents share how Camp gave their family something they hadn’t had in years: real time together, free from alternating shifts and constant worry. At Hole in the Wall, families are able to reconnect and enjoy time together as a family, while surrounded by a community who understand the challenges they face.

This is the magic of Hole in the Wall: a place where a diagnosis doesn’t define what’s possible, where families reconnect instead of just coexisting, and where “us time” finally means just that.

The Healing Feeling series is a collection of stories, connections and examples of the impact The Hole in the Wall Gang Camp has on every single member of our community. Join us as we hear firsthand how a single Camp experience can provide a transformational spark in the lives of children facing serious illnesses and their families.